Projects
Below is a list of the RTC's active projects in the area of disability statistics. For more information, see the contact person(s) for each project.

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This activity will study access people with ID/DD and their families have to consumer directed community supports (CDCS). It will use a participatory action research model with people using CDCS to learn about their needs and challenges; how staffing needs are addressed and how this compares to staffing patterns in traditional services. Methods will also include: 1) a national survey of state DD Directors, 2) a survey of a sample County Directors of disability services in Minnesota, 3) review of extant data sets in Minnesota, 4) a series of 6-8 individual case studies to gather information about the experiences of CDCS participants; 5) a series of 3-6 focus groups to explore CDCS support and staffing issues that emerged in the case studies; and 6) surveys/interviews with 100-150 sample members to gather information from consumers or family members who direct the supports.

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For over 20 years, the National Residential Information Systems Project has been collecting and disseminating annually, national and state statistics on public and private residential services, Medicaid program utilization, expenditures, etc.

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This project developed a draft of a Report to Congress on the supply and demand of direct support professionals needed to serve people with intellectual and developmental disabilities (ID/DD). The project included reviews of research, data estimates and projections, consultation and interaction with federal government staff, formulation of recommendations and development of an initial draft report. The RTC utilized its expertise in service systems for individuals with ID/DD, current workforce supply and demand and related factors, and data analysis expertise to develop this report in response to a Congressional request.

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