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Residential Support/Medicaid
Publications & Products
Below is a list of publications and products related to the RTC's work in the areas of residential support and Medicaid.
Books/Book Chapters
| • | Supporting Adults to Live in the Community - A chapter by Steven J. Taylor, in Adults with Down Syndrome, S. M. Pueschel (Ed.). This chapter examines community living in the context of a critique of the principle of the least restrictive environment and the traditional residential services continuum. It describes characteristics of current, alternative approaches such as supported living and self-determination. (2006)
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| • | Out of the Institution Trap - A chapter by John O'Brien, in K. Johnson & R. Traustadottir (Eds.), Deinstitutionalization and people with intellectual disabilities: In and out of institutions (pp. 259-273). This chapter discusses resistance to and dissolving of the institution trap, and outlines as agenda for moving on from institutionalization. (2005)
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| • | The Institutions Are Dying, but Are Not Dead Yet - A chapter by Steven J.Taylor, in K. Johnson & R. Traustadottir (Eds.), Deinstitutionalization and people with intellectual disabilities: In and out of institutions (pp. 93-107). This chapter examines the history of the use of the continuum model of services and the principle of the least restrictive environment. It concludes with discussion of the consensus and controversy that still surrounds deinstitutionalization today. (2005)
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Case Studies & Best Practices
| • | Reviews of the Medicaid Home and Community-Based Services Programs in Six States - These reports summarize findings and observations of site visits to six states between February and
August, 2000 to view and discuss with key state officials, service providers, program participants and
others the implementation, outcomes and challenges of each state’s Medicaid Home and Community-
Based Services (HCBS) “waiver” program. The six states were chosen based on an array of statistical
data on state HCBS programs to reflect the full range of “development.” (2000)
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Fact Sheets
| • | Analysis of the Centers for Medicaid and Medicare Services (CMS) Minimum Data Set (MDS) Characteristics of Nursing Home Residents in 2000 -
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Reports
| • | Minnesota Waiver Report - An independent evaluation of the quality of services and system performance of Minnesota's Medicaid home and community based services for persons with mental retardation and related conditions. (2000)
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| • | National Residential Information Systems Project (RISP) - For over 20 years, the National Residential Information Systems Project has been collecting and disseminating annually, national and state statistics on public and private residential services, Medicaid program utilization, expenditures, etc.
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| • | 2010 FAST Family Support Survey: National Results (PDF) - The Family Advocacy and Support Training (FAST) project was funded by the Administration on Developmental Disabilities. The FAST project was designed to develop and test resources to assist families of youth and young adults with disabilities through the transition from school to adult life. Its curriculum development and training components focused specifically on people who were ethnically and socioeconomically diverse. This report summarizes the results of a 2010 national internet survey of 2,416 parents or relatives of children and youth ages 11 years to 39 years with disabilities from 54 states or U.S. territories. This report describes key information needs, unmet service needs, and service quality for youth and young adults with disabilities in transition from school to adulthood (defined for this effort as ages 12 to 22 years). More information about the FAST project and its training products can be viewed at http://www.fastfamilysupport.org/. (2010); File Size: 789 KB
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| • | 2010 FINDS National Survey (PDF) - In 2010 The Arc of the United States conducted a national internet survey that aimed to capture the perspectives of people with ID/DD and their family caregivers. The Family and Individual Needs for Disability Supports (FINDS) survey focused on issues including educational, housing, employment and support needs of people with ID/DD and their families. More than 5,287 family respondents participated in the survey; of these, three-quarters shared their home with a person with ID/DD. Overall, 95% of respondents were parents, siblings, children, grandparents or other relatives of a person with ID/DD. This is the technical report for that project. The Arc report Out of the Shadows…Into the light based on this survey can be downloaded from the FINDS website at: http://www.thearc.org/page.aspx?pid=3212. (2010); File Size: 3.54 MB
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| • | Minnesota Quality Assurance Panel Interviews with Counties Final Report (PDF) - This report summarizes the results of interviews with county officials in Minnesota regarding their quality assurance efforts. These interviews addressed both current practices as well as recommendations for improvements to the quality assurance infrastructure at the local, regional and state levels. (2007); File Size: 47 KB
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| • | Minnesota Statewide Quality Assurance Activities by Service Type (PDF) - The Minnesota Quality Assurance Panel examined existing quality assurance activities in
Minnesota before developing its recommendations for revisions to this system. This document is
a summary of the information collected by the Panel about the various QA activities. (2007); File Size: 126 KB
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| • | A Case Study of the Massachusetts Department of Mental Retardation’s Development & Implementation of
Quality Councils (PDF) - Prepared by the Human Services Research Institute (HSRI) this report gathers information on Massachusetts regional council membership, how information is shared between regional councils and the statewide council, costs associated with operating regional and statewide councils, and next steps under consideration by the Massachusetts Department of Mental Retardation. This case study addresses these key areas of program development and provides an overview of the Massachusetts quality council experience to date. (2007); File Size: 154 KB
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| • | Instrument Review for Statewide Sample of Service Recipients (PDF) - This memo and the attached copy of the CMS Quality Framework was used by the Minnesota Quality Assurance Panel to develop the set of outcome indicators to be used to gather information from service recipients that will establish the status and limitations in quality in service delivery, support responses to problems and assist in implementing programs of quality improvement. (2006); File Size: 65 KB
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| • | Waiting List Report - Results and findings from a national survey of state directors of developmental disabilities services regarding the nature of state programs and responses for persons with mental retardation and developmental disabilities (MR/DD) waiting for services.
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Training Resources, Guides & Curricula
| • | A Guidebook on Consumer Controlled Housing - This guidebook was developed to advance the consideration of consumer controlled housing options by people with developmental disabilities, their families, and others who help them. (2000)
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