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Support of Families and Family Life Across the Lifespan
Group Members
(Invitations Accepted)
John Agosta, Ph.D.
Vice President
Human Services Research Institute
8100 SW Nyberg Road
Suite 205
Tualatin, OR 97062
Phone: 503-885-1436 Fax: 503-362-7729
agosta@hsri.org
Preferred Contact Method(s): email/phone
Lynn Breedlove
Executive Director
Wisconsin Coalition for Advocacy
16 North Carroll Street
Suite 400
Madison, WI 53703
Phone: 608-267-0214 Fax: 608-267-0368
Lynnb@w-c-a.org
Preferred Contact Method(s): email
Diane Coughlin
Director
Maryland Department of Health and Mental Hygiene
Developmental Disabilities Administration
201 West Preston Street
4th Floor, O'Conner Building
Baltimore, MD 21201
Phone: 410-767-5600 Fax: 410-767-5850
CoughlinD@dhmh.state.md.us
Preferred Contact Method(s): fax
Nancy DiVenere
Executive Director
Parent to Parent of Vermont
600 Blair Park Road, Suite 240
Williston, VT 05495-7549
Phone: 802-764-5290 Fax: 802-764-5298
Nancy.DiVenere@partoparvt.org
Preferred Contact Method(s): email
Steven Eidelman
Executive Director
The Arc of the United States
1010 Wayne Avenue
Suite 650
Silver Spring, MD 20910
Phone: 301-565-5669 Fax: 301-565-3843
eidelman@thearc.org
Preferred Contact Method(s): email/phone
Elizabeth Erwin
Associate Professor & Coordinator
Dept.of Educational and Community Programs
Queens College of the City University of NY
Flushing, NY 11367
Phone: 973-744-3975 Fax: 973-744-3975
ErwinCUNY@aol.com
Preferred Contact Method(s): email/phone
Ann Forts
Self Advocate & Motivational Speaker
"UP" Syndrome
P.O. Box 644
Center Harbor, NH 03226
Phone: 603-253-6722
annieupfund@fcgnetworks.net
Preferred Contact Method(s): email
Glenn Fujiura, Ph.D.
Associate Professor of Human Development and Director, Institute on Disability and Human Development
Disability and Human Development
Institute on Disability and Human Development (UCE)
1640 W. Roosevelt Road
Chicago, IL 60608
Phone: 312-413-1977 Fax: 312-413-4098
gfujiura@uic.edu
Preferred Contact Method(s): email
David Keer
Program Manager
NIDRR
4711 Hollywood Road
College Park, MD 20740
Phone: 202-205-5633 Fax: 202-205-8515
david.keer@ed.gov
Preferred Contact Method(s): email
Myra Madnick
Executive Director
National Down Syndrome Society
666 Broadway - 8th Floor
New York, NY 10012
Phone: 800-221-4602 Fax: 212-979-2873
mmadnick@ndss.org
Preferred Contact Method(s): email
Paul Marchand
Assistant Executive Director for Policy & Advocacy
Governmental Affairs
The Arc of the United States
1331 H Street, NW, Suite 301
Washington, DC 20005
Phone: 202-783-2229 Fax: 202-467-4179
marchand@thearc.org
Preferred Contact Method(s): email/phone
D.J. Markey
Co-Director
Pyramid Parent Training
2552 St. Philip St.
New Orleans, LA 70119
Phone: 504-827-0610 Fax: 504-827-2999
DMarkey404@aol.com
Preferred Contact Method(s): fax
Ursula Markey
Co-Director
Pyramid Parent Training
2552 St. Philip St.
New Orleans, LA 70119
Phone: 504-827-0610 Fax: 504-827-2999
DMarkey404@aol.com
Preferred Contact Method(s): fax
Richard Melia, Ph.D.
Director, Research Sciences Division
National Institute of Disability and Rehabilitation Research
3060 Switzer building
330 C Street SW
Washington, DC 20202
Phone: 202-205-8134
Richard.Meila@edu.gov
Preferred Contact Method(s): email
Patricia Morrissey, Ph.D.
Commissioner
Administration on Children and Families
Administration on Developmental Disabilities
U.S. Department of Health and Human Services
200 Independence Avenue, S.W.
Washington, DC 20201
Phone: 202-690-6590 Fax: 202-401-9507
pmorrissey@acf.dhhs.gov
Preferred Contact Method(s): email
George Singer, Ph.D.
Professor
School of Education
University of California at Santa Barbara
Givertz Graduate School of Education
Phelps Hall, UCSB
Santa Barbara, CA 96106
Phone: 805-893-2198 Fax: 805-893-7264
singer@education.ucsb.edu
Preferred Contact Method(s): email
Leslie Soodak, Ph.D.
Associate Professor
School of Education
Pace University
Buchsbaum House
861 Bedford Road
Pleasantville, NY 10570
Phone: 914-773-3875 Fax: 914-238-6987
lsoodak@pace.edu
Preferred Contact Method(s): email
Rud Turnbull, LL.B., LL.M.
Co-Director
The University of Kansas
Beach Center on Families and Disability
3111-B Haworth Hall
Lawrence, KS 66045
Phone: 785-864-7610 Fax: 785-864-5825
rud@dole.lsi.ukans.edu
Preferred Contact Method(s): email
Ann Turnbull, Ph.D.
Co-Director
The University of Kansas
Beach Center on Families and Disability
3111-B Haworth Hall
Lawrence, KS 66045
Phone: 785-864-7610 Fax: 785-864-5825
turnbull@mail.ukans.edu
Preferred Contact Method(s): email
Marty Wyngaarden Krauss, Ph.D.
John Stein Professor of Disability Research
The Heller School for Social Policy and Management
Brandeis University
P.O. Box 9110
MS 035
Waltham, MA 02454-9110
Phone: 781-736-3832 Fax: 781-736-3864
krauss@brandeis.edu
Preferred Contact Method(s): email
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